Ellen V. Sigal, the chairwoman of Friends of Cancer Research, an advocacy group, said “there’s a disconnect” between efforts to pass the Cures Act and to repeal the Affordable Care Act.
“Most people voting and lobbying on Capitol Hill have health insurance,” Ms. Sigal said. “Intellectually, they may know that some people are suffering without insurance. But do they have empathy? Those who are insured may not emotionally understand what it is like for those who are not insured. We live in our own bubble.”
Lawmakers have their own explanations.
For one thing, the two health care efforts vastly differ in size. At a cost of $6.3 billion, the Cures Act is not small, but the Affordable Care Act cost hundreds of billions of dollars and affected every facet of medicine — from insurance coverage to delivery of care. It was bound to be more difficult to enact.
The Republican authors of the Cures Act — Representative Fred Upton of Michigan and Senator Lamar Alexander of Tennessee — went to great lengths to work closely with Democrats, led by Representative Diana DeGette of Colorado and Senator Patty Murray of Washington. The cooperation paid off.
“We had bipartisan buy-in from Day 1,” Ms. DeGette said.
By contrast, the Affordable Care Act was adopted in 2010 without a single Republican vote — either because, as Democrats have said, Republicans refused to cooperate; or, as Republicans have said, because it was jammed down their throats.
“We have been like the Hatfields and McCoys ever since, shooting each other,” Mr. Alexander said.
Mr. Alexander, deeply frustrated by his dealings with the Obama White House in 2010, learned from that experience. “The next administration or the next Congress will not be repealing the Cures Act,” he said, “because we have taken the time to work out our differences, and create a consensus of support.”
The American Cancer Society supported both the Affordable Care Act and the current biomedical research bill, and sees the two efforts as intertwined.
“The Cures bill includes incredibly important reforms to get treatments to people faster,” said Dr. Brawley, the top medical officer at the society. But he added, “We need to get those treatments to all people faster,” and he emphasized the word “all.”
The surge in spending on medical research will almost surely lead to new treatments, which could include some extraordinarily expensive drug therapies. To get such treatments, patients would need to have not just insurance, but good insurance coverage. (Some drug companies offer prescription assistance programs to help defray the costs.) A repeal of the Affordable Care Act could leave millions without access to the benefits of the biomedical research bill, Democrats have said.
Another factor in passage of the Cures Act was the relentless advocacy of Dr. Francis S. Collins, director of the National Institutes of Health, who helped lawmakers appreciate the possibility of a golden age of medicine — with an artificial pancreas for diabetics, a vaccine for AIDS and the use of stem cells to repair damaged heart tissue.
Representative Steve Cohen, Democrat of Tennessee, said: “My secretary of defense is Francis Collins, because the true enemy of each and every one of us isn’t somebody in South Korea or somebody in Iran or ISIS. It’s cancer, it’s Alzheimer’s, it’s AIDS, it’s diabetes, it’s heart disease — all those dreadful, awful diseases that N.I.H. is looking for cures for.”
Even as Congress wrapped up approval of the Cures Act this week, Republicans were having serious discussions about how to repeal and replace the Affordable Care Act without interrupting coverage for the newly insured. Republicans say they feel an obligation to move fast, because the law is crushing many families and small businesses with high costs.
Democrats say some Republicans want to repeal the president’s signature legislative achievement just because it is called Obamacare. It would be “a poke in his eye politically,” said Senator Tim Kaine, Democrat of Virginia, who warned that a repeal could be “catastrophic to tens of millions of Americans.”
The Cures Act would also increase access to mental health care, which has been a bipartisan goal since the fatal shootings in 2012 of 20 children and six adults at Sandy Hook Elementary School in Newtown, Conn.
But Representative Frank Pallone Jr., Democrat of New Jersey, said the benefits of the mental health provisions “will be far outweighed by the catastrophic harm caused by individuals with mental illness if the Republicans move forward with their radical plans to repeal the Affordable Care Act.”
Sponsors of the Cures Act toured the country, visited clinics, held hearings and listened to patients who recounted their struggles with cancer, Alzheimer’s and dozens of other diseases. Patients and their well-organized advocacy groups proved to be more effective than the uninsured in lobbying Congress.
In debates on the Affordable Care Act, lawmakers have continually fought over the proper role of the federal government.
Republicans see the need for a federal role in conducting research and regulating drugs, but not in regulating the details of health insurance. Under the 2010 law, they have said, the Obama administration has issued so many regulations, bulletins, official policy statements and informal “guidance documents” that not even federal officials can keep track of them all.
Democrats have said the federal standards are needed to guarantee universal access to “essential health benefits,” and to prevent insurers from discriminating against those who are sick.